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Safety Tattoos
The discussion of safety comes up often in children with CAS. One concern is if you get separated from your child at an event or otherwise, he/she won’t be able to communicate their name or other...
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How far he’s come!
I have another blog which is much more of a journal of motherhood and a keepsake for Henry. (I’m terrible about writing in all of those baby books you get at your shower). I haven’t written in it for...
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Apraxia Awareness Day ~ May 14th
It’s very exciting and a long time coming… the first official Apraxia Awareness Day!!! I’m thankful for it and even outside of this day don’t hesitate to share information about apraxia and Henry’s...
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Where is my Henry?
I had to take Henry for lab work yesterday. He’s been having clusters of seizures and they wanted to test his Topamax levels before increasing the dose on this evil drug, his 9th seizure med, once...
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Update
The day following my last post was one of the worst thus far. Henry had a seizure in his sleep the night before, but seemed ok that day. He generally has been preferring to lay low, but since it was...
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